04655, Kyiv
Polyarnaya Street, home 20, office 311
mariya.aylen@open-palms.com

Uschapovski Zlata and Katya

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9 лет

Диагноз: Cystic fibrosis
Категория: Підопічні сім`ї
Oxygen.ua

"Today, the older sister Zlata is already going to first grade, but seven years ago it was frightening to think about whether we'd survive until then... There were so many things we had to live through. On three separate occasions, my daughter came close to dying." Cystic fibrosis--the same diagnosis as Zlata's, has now been confirmed for her younger sister Katya. How do you go on with your life? How can you manage everything when you're by yourself with two seriously ill children? "One must simply live and do everything that is in one's power, and let them, above, sort it out," their mother Lena answers her own question. The girls' parents are trying hard, but there simply isn't enough time in the day to do everything themselves.

Their mother is with the children 24/7, and giving the daily treatments and multiple medications to two young children takes up a huge amount of time. Regular trips to the hospital for tests and periodic admissions to the hospital take up time as well. She truly has no time for any serious employment. Their father earns all the income for the family's daily expenses, and to do so, he spends most of his time working abroad. It is difficult for the children's mother to take care of all the daily tasks and difficulties by herself; it is equally difficult for the father to be away from his wife and children so much, but when their children's life is on the line, he does everything he possibly can.

Unfortunately, cystic fibrosis is a very serious illness. It causes damage to all the body's systems, and only multiple daily treatments allow a person with cystic fibrosis to survive. Zlata and Katya could grow up, finish their education, get a job, create families and give birth to healthy children--all of these things can become a reality, if you help buy the necessary equipment.

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