"This is a special baby! He has a rich inner world, he is very open and has a sincere and good heart. The son changed me, thanks to him I realized that true values in life are not material, but spiritual”, mother Victoriya writes. And at the same time, it must be admitted: without money her son's life is in danger. Ilyusha was born with a severe genetic disease, cystic fibrosis, which affects all organs, especially respiratory and digestive systems.
In the lungs of people with cystic fibrosis, sputum of high viscosity is accumulated, and it is very difficult to cough it up. Moreover, it is inhabited by the infections that become chronic. In order not to let them kill the lungs you have to make a lot of effort: to do special exercises and procedures every day, take numerous inhalations and medicines, and so - all your life. Sick people get some drugs at the budget costs, but many of them they have to buy themselves, and it costs much more than the usual family can afford.
From what the boy looks like, you will not say that he is ill. From his birth, the boy developed well, began to walk early, grows smart and inquisitive, loves to play ball with his father and read books with my granny. He is happy to be involved in helping relatives to work at the farm and deliberately strives to follow the rules of the therapy. Ilyusha is still a kid, and how he will grow largely depends on whether his family will receive necessary support now.