Masha is only 6 months old and now she is one of the most serious patients with cystic fibrosis in Ukraine. Her mother called us from Cherkasy intensive care unit, and we were thinking together what to do. Masha has a very low weight. She is only 4.5 kg being 6 months old! Due to the main diagnosis shortly after the birth of Masha, they had to put the colostomy. Now it looks like the baby does not gain weight because of it, but it's also not possible to do the stoma reversal now. The doctors say she should grow at least up to 6 kg.
Masha has a long struggle ahead. But now it depends on whether the kid can gain weight and how fast it will be.