04655, Kyiv
Polyarnaya Street, home 20, office 311
mariya.aylen@open-palms.com

To breathe and live. Cost of freedom. 2

05/11/2018

"It became impossible for me to be able to walk down the steps from the 5th floor and get back to my apartment using just my own lungs", Igor shares his misfortune. "And can you realize what it's like – not to be able to go outside when you're just 21?".

The oxygen machine that Igor currently has operates only from AC, no batteries, and this means that the boy can breathe freely only when he's within confines of his apartment. So he can never leave it because of unbearable shortness of breath waiting for him immediately behind the doors.

"A year and a half ago, even though I've already been using the oxygen concentrator, I still could master my strength and venture for a walk once or twice a week, whereas now I only leave the apartment in case of a dire need, say, when I have to undergo medical tests or be admitted to the in-patient ward. It is extremely difficult to go down from the 5th floor with no elevator and oxygen, let alone try to get back on the 5th floor… I have to call for a mobile ICU equipped with an oxygen supply to bring me from home to the hospital and back. Otherwise, what can I do – just stay here and try to pull it through…".

As of today, Igor's disease is considered incurable and his state is gradually getting worse. However, it is possible to keep on living even in a state like this. What can really help the boy is a portable oxygen unit – its batteries will give him the possibility to leave his apartment freely, walk outside, plan some meetings, business in the city and not to suffer at home when he feels bad and has to go to the hospital. It might feel eery for a healthy person to have to use special equipment to be able to breathe, but for Igor, it is a chance to live, a chance to freedom.

https://ubb.org.ua/en/project/4561/